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第23章超越恐惧BeyondFear
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佚名Anonymous
&oldlastyearthatmy2-year-oldsonhadahreatenedhislife,Itriedtostrikeabargainwithfate—Iwoulddoanything,Iwouldtrademyoldlifeaway,ifonlyhewouldgetbetter.Welearoursohsoftreatment,maybeevenayear,beforewhetherhewouldreyhusbandaoadeadeningroutithehospital,theathometobewithhter,thenrightbacktothehospital.Thedaysandnightswereablurofmedicalreports.Fearanddespairengulfedme.
Iwatothersatthehospital.Isawthemotherofthechildwithcysticfibrosisfaithfullyadministerphysicaltherapy,hearihump-thump-thumpasshepouhechild'schest.Hereffortsincluedamixofdedi,hopeandpaihemotherwhoseinfanttwinsbothhaddwhomaowritethank-youhehebabies'manyhospitalizations.
IworriedthatIotliveuptothesemothers'heroisTheydidwhatgoodmothersaresupposedtodo,whatmothersofsickhavetodo,andwhatIshoulddo,too.ButIdidnotfeelselfless,thewaythoseothermothersseemedtofeel.Iwasashamedtoadmitit,butmihmyterrrief.Afterthefirstthreeweeks,werealizedwewereoofamarathon.ThefriendswhokedtellingmeIshouldgobacktowork.Itwouldbegetabreak,theysaid.Iresisted.Goodmothers,Ithought,donotabandontheirsickforwork.Yetwhenmyson'sdoehethoughtitwouldbefiheailhisassessments,Itoremyselfa>
Iotworkanormalschedule—farfromit.Butasthemonthsofmyson'streatmentdraggedon,hewasabletostayoutofthehospitalferperiods.MyhusbandandIstilltookturienticoratthehospital.Iwasluckythatmyfamilyandmybabysittercouldalsorelievemesothatmysonwasneveralone.
&illloIodrtobewithhiButtomysurprise,IfoundthatgoingtoworkwhenIcouldeasemysenseofhelplessness.Icouldbedistracted:therewerephoneddeadlinesandarhythmtobesweptinto.Icouldbeinething.
&yatfirstaboutthesolawork.Iofteheothermhtofme—takingmyworkclothestothehospital,shis'stallafteralongnightinwhichwe'dheardthecriesofallour.
&ually,Irealizedthatgettingawaywasgoodnotoformysonanddaughter.Whenmysonfirstbecamesick,thedoeIhadtforhiIotshowfear.SomehowIalsohadtofideomydaughter,tohelpherehadbefallenus.
AlthoughIfearedthatwhtbeselfish,Icouldseethatitactuallyseemedreassuringtomy,asignthatweeurntoourroutines.ledgethatlifecouldgoon.Itwasastatementofhope.
On,asIhadsooftenrealizedsinceIhadbeother,Iuoodhowdangerousarethe“shoulds”
ofmotherhood,howdestructiveissociety'sinsistewaytobeagoodmother.Toomaellusthatgoodmothersdonotabandontheirtobabysitters.Goodmothersprovetheirdevotionbyheir.Yetsuchrulesighatmothersarenotallalike,thattherearemanywaystogivewhattheyneedaherulestellmothershowtoactwithouttakingintoaothersfeelandhowthosefeelingswillaffecttheir.
IfIhadfollowedtherules,Iwouldhavesuccumbedtoterrorandfailedmy.Ihisordealeasedmyguiltaboutleavingmyson'ssideattimes.IrealizedthatI,likemanyotherswhocareforsickpeople,neededsomewhereelsetogoonawhiletodrawbreathandfindmeaurningtothew.Forme,myjoblace.Fhtbesomeplaceelse.
Mysnow,butIamstilltooclosetohisillouandfullywhatlessonsI,whatmeaningIwrest,fromthisexperience.AllIsayisthatwwhenmychildwassosickmightlfromtheoutside,butontheihelpedkeepmesane.Igrewlessiheothermothers.IallowedmyselftoseethatIwased.Wewereallgforour,eaouro>
去年,当我得知两岁的儿子患了一种危及生命的疾病时,我努力跟命运抗争——只要他能好起来,我做什么都可以,甚至可以拿我的生命来做交换。
我们得知儿子需要几个月,甚至是一年的治疗,才能确定他是否有康复的可能后,我和丈夫陷入了一种死气沉沉的固定生活模式中:第一天晚上待在医院,第二天晚上在家陪女儿,然后又待在医院。
就这样日日夜夜被治疗报告包围着。
恐惧和绝望简直要把我吞没了。
我观察过医院里的其他母亲。
一个孩子患了囊性纤维变性,他母亲竭尽全力地协助他接受理疗,连续敲打孩子胸部,去听“砰砰”
的声音。
她的努力中饱含着奉献、希望和痛苦。
还有一位很值得同情的母亲,她的一对双胞胎婴儿患了癌症,她却在孩子们多次治疗之后还能强忍着悲痛给护士们写感谢信。
我担心自己可能不会像这些母亲一样坚强。
她们所做的正是一位称职的母亲该做的,也是子女患了病的母亲不得不做的,也是我应该做的。
但我并没有像其他母亲那样无私奉献。
我很惭愧地承认这一点,同时感到异常的恐惧和悲伤。
三周过后,我们意识到这仅仅是一场马拉松赛的开始。
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